Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.
In 2006 Tom Ferguson, MD asked Plutopia’s Jon Lebkowsky to attend a retreat with a group of physicians and others. This group, referred to as the e-Patient Scholars Working Group, had been working with him on a white paper, published in 2007 as “e-Patients: how they can help us heal healthcare.” Tom died not long after that retreat, and Jon continued to meet with that group. They went on to found the Journal of Participatory Medicine and the Society for Participatory Medicine. The group continued to meet regularly over the years, and to stay in touch via an email list. Plutopia News Network invited several members of the group to introduce themselves and talk about how they became involved with participatory medicine. We also talked about participatory medicine in the era of Covid-19.
Cast of Characters
- Joe Gradeon, President at Graedon Enterprises, Inc. and Cohost of The People’s Pharmacy
- Terry Graedon, Treasurer at Graedon Enterprises, Inc. and Cohost of The People’s Pharmacy
- Gilles Frydman, Chief Strategy Officer at American Sleep Apnea Association, founder of the Association of Cancer Online Resources
- John Grohol, Psy.D., Founder of PsychCentral.com
- Alan Greene, Pediatrician, Author, and Speaker Co-founder at DrGreene.com
- Cheryl Greene, Co-founder & Executive Producer at DrGreene.com
- Charlie Smith, MD, Dr. Smith Direct Care
- Danny Sands, MD, MPH, CMO, Backpack Health at Invicro, A Konica Minolta Company
- Dave deBronkart, Chief Patient Officer at PocketHealth; Keynote Speaker
- Dave deBronkart : Tom Ferguson’s triangles
- Dave deBronkart: patient researcher Hannah Wei kicks off FHIR DevDays
- John Grohol : Also 60 Minutes on Covid Long Haulers
Photo by Jon Lebkowsky: Tom Ferguson with Danny Sands at a the 2006 retreat and meeting of the e-Patients Scholar Working Group.